Rare Disease Day: February 28 2017

Did you know that 1 in 10 Americans in the U.S. have a rare disease?  Out of those 30 million people, more than half are children.  Frank is one of them.
Eosinophilic (ee-oh-sin-oh-fill-ick) associated diseases are just a few of the 7,000 rare diseases and disorders.  If it affects fewer than 200,000 people, it is rare.  Frank has what is called Eosinophilic Esophagitis.  Try saying that three times fast!

Eosinophilic Esophagitis is an allergic inflammatory disease that causes above normal amounts of white blood cells, called eosinophils, in the esophagus.  This disease is usually generated when the body is exposed to certain foods.  

Research for a cure is going strong and there are promising treatments on the horizon.  For now, most treatment consists of food elimination, steroids and proton pump inhibitors (PPIs) such as Prevacid.  Frank is treated with a combination of all three.  Although there are cases where they just do not work.  Therefore, the patient is sometimes treated with formula and a gastrointestinal tube.  Only 5% of the known 7,000 rare diseases have treatments available and nearly 80% of research funding is donated by the families and their loved ones.

Rare Disease Day is about raising awareness for everyone rare.  This years theme and slogan are “research”…

With research, possibilities are endless.

You can help raise awareness today!  Frank challenges you to post a picture to social media wearing your favorite pair of jeans.  Tag #wearthatyoucare and #rarediseaseday2017 in support of Rare Disease Day and Global Genes Campaign.  Don’t forget to tag Frank and me in your posts!  We would love to see them on Instagram @thestepmomster and Twitter @The_StepMomster.  

Sharing is caring so share this and challenge your friends!

Sources: apfed.orgrarediseaseday.orgglobalgenes.org

DIY Character Bank

When you have a busy family, getting everyone where they need to be is a challenge.  Getting them where they need to be and fed can be an even bigger one. Then Mom is left with all the empty bags and bowls in her car! 

Frank has a lot of allergies, so the list of fast food restaurants we can eat is cut short, to just one.  Chick-Fil-A.  I am totally okay with that considering last year I was selected to be apart of the Chick-Fil-A Moms Panel for 2016-2017.  I am stoked to be apart of it too because we love that place! 

When J and I have worked every day or Frank has wrestling practice, it just makes dinner and life a little easier just to swing through that drive through.  On any given week, we visit Chick-Fil-A about three to five times… maybe more. Don’t judge me. 

If you are like our family, you end up with quite a few of those plastic soup or grilled nugget containers.  Instead of just tossing them in the trash, why not reuse them?  Up cycle them and give them a new life.  

Our #chickfilamomsdiy challenge for February was to find new life for the oh so delicious Chicken Tortilla Soup container.  Continue reading to find out how my youngest and I turned ours into a bank for his money he works so hard to collect from his Pawpaw…

What You’ll Need:

  • an empty CLEAN Chick-Fil-A soup container
  • a character of your choice (we chose a juice bottle head so the container could be his body)
  • paintbrush
  • scissors
  • hot glue gun & glue sticks
  • paint 

Paint both top and bottom of the container.  You’ll need a few coats to cover the black.  I applied three for good measure.

Next, cut a space in the Chick-Fil-A square.  This will be where your money goes!

This part was extra fun!  Paint the “body” of your bank. 

Lastly, hot glue your characters’ head to the center of the top.

And…TA DA!!!  Your bank is ready for some moolah! 

Influenster: Fierce VoxBox

I was so stoked to receive my Fierce Voxbox this month from Influenster! A box full of awesome samples, full size speciality products, and everyday products to get you through your day.

What is Influenster? A great company that sends you complimentary goodies in exchange for your honest review of the products your receive. My opinions and reviews are strictly my own. 

I honestly do not know how I’ve made it through life without Madam CJ Walkers Brassica Seed Oil! It seriously has strengthened and tamed my insanely weird hair. 

If you’re interested in getting some pretty cool stuff in your mailbox every once in awhile and giving a simple review of your products, check out Influenster. Use www.influenster.com/r/2946994 to join! 

Give This Lady a Medal

Now I may let my “crunchy mama” side show for just a second here… 

I work in little baby boutique and it comes with some great perks. I get to see adorable babies all day long. Sometimes I get to squeeze their cute little selves but.. And here’s the kicker… I get to give them back! I mean, I totally get the baby fevers going on sure but I also get to hear some pretty cool labor and delivery stories too.

Stories about home births and unmedicated deliveries. I was even shown a wicked C-Section scar. I’ve always been fascinated by home births. In your own home, laboring. You have your own space and no one is making you stay in that bed. It sounds awesome. On the other hand… I don’t want the first words that my children ever hear to be a string of profanities. We know that would happen. Give me the drugs, lay me on the table. 

I breastfed Frank for 13 months, made his baby food, refused to put cereal in a bottle. Well Frank wasn’t having no stinkin’ bottle anyway but you get what I’m saying. I even baby carried most of the time. Five and a half years later and it is still pretty attached parenting. Seriously though… get out of my bed kid! My crunchy goes quite stale at “give me the epidural”.  

My labor and delivery was too easy. Umm, why don’t I get to be awesome? I had my epidural and everyone just assumed I was a witch because I still had full control over my legs but could not feel a thing!  I felt like it was too easy. Well, until Frank refused to come out and they just yanked him with the forceps.

You moms are straight up rockstars! My mom is one of you. I was not born at home but that woman only spent 3 hours in the hospital before I arrived. No meds at all, just straight up screaming at my aunt, “I DONT NEED ANY DAMN DRUGS!” Like. A. Total. Bad. Ass. Still to this day, that woman is stronger than I could ever hope to be. Still a total badass. 

You are all bad ass. All of you. The at homes, the hospital, the csection, the natural, the unmedicated. Every last one of you. Amazing. Your body held a freakin’ human being! You are amazing.

I still believe my mother deserves a standing ovation and a medal! Thank you, Momma.

Do you have an awesome story about bringing your babies earth side?  Share it with me in the comments or email me. I may share a few!

http://amzn.to/2m8Yija

We Can’t Dance Like No One’s Watching


Okay ya’ll… this is ridiculous.  This is pretty off topic but it’s something that has hit me close to my heart.  There aren’t any pictures, not any jokes.  Okay, maybe a joke or two.  Maybe I’m a little crazy but I had to get the feelings out.  There are… “words” in here so if you’re offended, I apologize now.  Ya’ll know I just say what I mean.
I’m not going to beat around the bush anymore, I’m just going to say it.  Why is the majority of social media a bunch of jerks?  Seriously, a girl… dancing her (pardon my french) ass off, while singing mind you, should have been flooding social media with the awesomeness that was her kick ass performance.  The most epic half time show I’ve seen in a while.  She killed it.  Knocked it out of the park.  Whatever you wanna call it.  It was great.

I woke up Monday morning to… not great.  Filling my news feed were comments about this womens’ stomach!  Nothing about how she rocked those songs.  Nothing about how she jumped off a roof and sang mid air.  Nothing about how she is barely 5 feet tall but looked like a boss holding up bedazzled shoulder pads!  IN HEELS!  That in itself should get the woman a medal or something.

“I was waiting to see a special guest at the half time show, but all we got was her gut.”

Seriously?  She probably doesn’t give two cents about your little tweet but I bet you some reader somewhere…does.  Did your mother forget to teach you decency?  You skipped the “How Not to Be An Asshole” lesson, didn’t you?  You’re the reason behind the little girl who refuses to eat that extra scoop of ice cream for dessert.  This is why that 15 year old will eat all of their dinner and then throw it up where no one can see them.  You’re the reason that 22 year old wakes up EVERY morning at 4am because she has become addicted to exercise.  Nothing she sees in the mirror is ever good enough.  She didn’t work out hard enough.  She should have ran that extra mile yesterday.  THIS IS THE REASON.

Why?  Why do we do this to each other?  Feel the need to pick out one minor “flaw” instead of seeing the complete awesome package.   Are we trying to make ourselves feel better?  Are you mad because you don’t have a lavish lifestyle?  Are you mad you don’t have a 100 thousand screaming fans?  Well I’m not.  Most of us don’t… and most of us don’t have a rock hard abdomen.

Let’s all agree, if by chance you were watching her sweet dance moves and listening to her voice, she was amazing.  She was totally wearing that gold jacket too!  I mean… I’m a little mad I don’t have one of those.

Too Many Things. Too Little Time.

First off… Pardon my awful writing and rambling, this is from my phone at the spare of the moment. Somethings, you just have to get out…

It’s my ONE YEAR Blogiversary! Y’all have continued to support me even when I went on hiatus. You’re all awesome and I’m grateful for you. 

Now…

Y’all… I haven’t seen you since October! October!! So many things happened last year and things just seemed to get lost along the way. Like my love for talking to y’all, or basically my sanity in general.

I don’t really know where to even begin. How do I catch you up? For starters, going from a stay at home mom to working two jobs is enough to make any mother insane. Let’s throw in a special needs child, a separation, moving back in with your parents, then living alone with your child for the first time and you’ll need a straight jacket. Which is honestly where I am. 

Lularoe CEO Mark Stidham

Over the last six months, things have seemed to slip away. I’m going to talk and discuss more as to why exactly things happened the way they did in a later post. I hit rock bottom last year but there were always two constants. Two people that were always there. One being my own mother, I could have never made it through what I did without her. I dont say it enough Mom… But thank you. The other… The BirthGiver. Kim has been my best friend. When I needed a shoulder to cry on or a good midnight texting rant, she was there. She is there. 

This family that we created and strived to make work doesn’t have to end because one of the marriages might have crumbled. We are a family. Regardless.

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